{"id":79637,"date":"2015-11-14T11:54:19","date_gmt":"2015-11-14T16:54:19","guid":{"rendered":"\/news\/?p=79637"},"modified":"2015-11-14T22:30:53","modified_gmt":"2015-11-15T03:30:53","slug":"parents-baby-terminal-illness-create-bucket-list-celebrate-life","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/parents-baby-terminal-illness-create-bucket-list-celebrate-life\/","title":{"rendered":"Parents of baby with terminal illness create bucket list to celebrate her life"},"content":{"rendered":"
<\/div>
\"Zailynn

Zailynn Mars was given just two years to live. Photo via Facebook.<\/p><\/div>\n

When Zailynn Mars was diagnosed with spinal muscular atrophy at 5 months old, her parents were obviously heartbroken and devastated. But they also knew that they wanted to fill their daughter\u2019s short life with as much living as possible.<\/p>\n

The now eight-month-old baby girl was given an estimated two years to live. Spinal muscular atrophy affects the motor nerve cells in the spinal cord, which means that Zailynn can no longer hold up her head like she was just able to do a few months ago. Over time, she will lose her ability to eat and breathe.<\/p>\n

<\/p>\n

Her parents want her to experience life\u2019s major moments and have created a bucket list of 51 events and activities for Zailynn to enjoy, and for them to enjoy with her.<\/p>\n

\u201cA father, to be a little girl, it\u2019s heartbreaking. [\u2026] We\u2019re making the best of the situation as possible. [\u2026] Children that have SMA, there\u2019s a quality of life you have to decide as a parent,\u201d Chris Mars, Zailynn\u2019s father told ABC<\/a>. \u201cWe want her to be happy and experience the fun things. When it comes to her staying in a hospital more time than she\u2019s been out of a hospital, that\u2019s where I draw the line.\u201d<\/p>\n

\"Zailynn

Zailynn and her father. Photo via Facebook.<\/p><\/div>\n

Zailynn must do therapies each day and lay flat 95% of the time in order to keep her lungs clear. But that won\u2019t stop the family from reaching their goals. So far they have crossed items off the bucket list including visiting the Milwaukee Zoo, a farm, and a children\u2019s museum. Her father was even able to walk her down the aisle when they attended a friend\u2019s wedding.<\/p>\n

\u201cNumber one is to have daddy walk me down the aisle,\u201d Mars explained. \u201cBeing able to walk my daughter down the aisle at her wedding is the best thing I\u2019d ever do that I\u2019d never be able to do.\u201d<\/p>\n

The family also has a prom scheduled, as well as family pictures, sibling pictures, a first birthday party, and singing karaoke with her daddy.<\/p>\n

\"The

The Mars Family. Photo via Facebook.<\/p><\/div>\n

\u201cI\u2019m very excited for her to be able to enjoy us holding her and dancing with her. [\u2026] And seeing other kids with her because she loves other kids,\u201d said her mother Katie Mars. \u201cShe just lights up and smiles. And she loves to giggle. And it will mean the world to me.\u201d<\/p>\n

Items left on the bucket list include a trip to Disneyland, raising awareness of spinal muscular atrophy on the Ellen show, a boat ride, and visiting the ocean. Her family and friends are doing all they can to celebrate Zailynn\u2019s life in the time they\u2019ve been given with her, and not take a single moment for granted.<\/p>\n","protected":false},"excerpt":{"rendered":"

When Zailynn Mars was diagnosed with spinal muscular atrophy at 5 months old, her parents were obviously heartbroken and devastated. But they also knew that they wanted to fill their daughter\u2019s short life with as much living as possible. The now eight-month-old baby girl was given an estimated two years to live. Spinal muscular atrophy […]<\/p>\n","protected":false},"author":62,"featured_media":80034,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[4],"tags":[6114,3095,6113],"yoast_head":"\nParents of baby with terminal illness create bucket list to celebrate her life<\/title>\n<meta name=\"description\" content=\"Parents of a baby girl diagnosed with spinal muscular atrophy have created a bucket list of important life events to complete in the two years she was given to live.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/archive.liveaction.org\/news\/parents-baby-terminal-illness-create-bucket-list-celebrate-life\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Parents of 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