{"id":77309,"date":"2015-10-21T13:39:27","date_gmt":"2015-10-21T17:39:27","guid":{"rendered":"\/news\/?p=77309"},"modified":"2015-10-21T14:00:34","modified_gmt":"2015-10-21T18:00:34","slug":"baby-charlie-lived-two-hours-after-birth-but-his-life-shares-that-every-child-is-precious","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/baby-charlie-lived-two-hours-after-birth-but-his-life-shares-that-every-child-is-precious\/","title":{"rendered":"Baby Charlie lived two hours after birth, but his life shares that every child is precious"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p><img decoding=\"async\" loading=\"lazy\" class=\"alignright wp-image-77775 \" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/10\/charlie-birth-3-465x700.jpg\" alt=\"Mary James\" width=\"277\" height=\"417\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-birth-3-465x700.jpg 465w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-birth-3-199x300.jpg 199w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-birth-3.jpg 996w\" sizes=\"(max-width: 277px) 100vw, 277px\" \/>I remember so vividly the day I found out I was pregnant. Though I thought there was no way I was pregnant, I told myself I\u2019d just take one test to be sure. To be clear, it wasn\u2019t that I didn\u2019t want a baby. I wanted one\u00a0desperately, but knew it wasn\u2019t time. I was in a serious relationship, but though my heart wanted babies, my brain knew it would be wise to wait until I was married.<\/p>\n<p>I finally checked the test. I couldn\u2019t believe my eyes &#8211; both lines were there, forming a beautiful plus. I stood still, hands shaking, eyes bright and watery. I went in to work, but my mind was far away, imagining all the lovely new ways my life was going to change. I had Sean over that night to give him the news. While getting pregnant hadn\u2019t been in our plans, we agreed that we loved each other and we\u2019d love this baby no matter what. As it turned out, the \u201cno matter what\u201d part would be tested more than we could have imagined.<\/p>\n<p><!--more-->I made a doctor\u2019s appointment and planned excitedly for the arrival of my baby. Two weeks before my appointment, I bled a little. I was terrified that I might have miscarried. I remember talking to the baby I was desperately hoping was alive, telling it to hang in there because I loved it and wanted it to survive more than anything! The doctor\u2019s office set me up with an ultrasound.<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"alignright size-medium wp-image-77762\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/10\/Mary-James-Charlie-ultrasound-233x300.jpg\" alt=\"Mary-James-Charlie-ultrasound\" width=\"233\" height=\"300\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/Mary-James-Charlie-ultrasound-233x300.jpg 233w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/Mary-James-Charlie-ultrasound.jpg 268w\" sizes=\"(max-width: 233px) 100vw, 233px\" \/>Sean and I went to the appointment together. Much to my relief, the ultrasound technician confirmed that there was indeed a live baby and I was farther along than I thought, 10 weeks already! My eyes were glued to the ultrasound screen. My baby looked like a tiny person, not just a blob. We saw it move around, waving its arms up and down just like an infant would. Facial features were even distinguishable which amazed me!<\/p>\n<p>The ultrasound tech mentioned she was having trouble seeing the baby\u2019s lower limbs, which she blamed on his position. They sent me across the hall to a specialist. This technician also couldn\u2019t see much of the legs. I asked her if that was terribly unusual, and she tactfully indicated it was, and said the specialist would be in shortly.<\/p>\n<p>I asked Sean if he was okay with a baby with tiny legs. He replied without hesitation that he was, saying he wasn\u2019t too tall, so our kid would fit in. I felt the same. This child was ours and I\u2019d love it, legs or no legs. It was a bump in the road, but I wasn\u2019t phased. We sat in the room for what felt like forever. I couldn\u2019t imagine what was taking so long. Why couldn\u2019t they just tell us our baby had tiny legs? I hadn\u2019t considered that it could get worse.<\/p>\n<p><a href=\"http:\/\/www.liveaction.org\/petition\"><img decoding=\"async\" loading=\"lazy\" class=\"size-full wp-image-68636 aligncenter\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/07\/DefundAd-400b.jpg\" alt=\"DefundAd-400b\" width=\"400\" height=\"170\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/07\/DefundAd-400b.jpg 400w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/07\/DefundAd-400b-300x128.jpg 300w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/a><\/p>\n<p>The doctor finally came and said there was something seriously wrong with our baby, and that its survival was unlikely. Some organs were outside of the body and the legs were underdeveloped. Sean took my hand. The doctor told us that chromosomal abnormalities were likely, and recommended a blood test. We agreed. He also told us termination was recommended. I was shocked.<\/p>\n<p>While awaiting results, I researched the conditions the doctor had mentioned. By the end of the week, I was confident that there was no chance I would terminate. I was going to give it as much life as possible. This was my child. My unconditionally loved, wanted, perfect child.<\/p>\n<p>When I got the call they told me that it all came back normal, and I was having a boy! I was happy and hopeful for the pregnancy again. I could handle a few birth defects. I\u2019d love my son just the same.<\/p>\n<p>But at the next appointment, the specialist explained that since there were multiple defects there was likely a bigger problem that would prevent survival. I didn\u2019t want to believe it. I kept talking to my baby every day, singing to him in the car and touching my growing belly almost constantly. We decided to name him Charlie.<\/p>\n<p>I don\u2019t think reality sank in until I read the MRI report. They detailed all the problems, and they mentioned <a href=\"https:\/\/rarediseases.info.nih.gov\/gard\/3251\/limbbody-wall-complex\/resources\/1\">Limb-Body Wall Complex<\/a>, which I had heard of but hadn\u2019t wanted to acknowledge. On the way to work, Linkin Park\u2019s &#8220;Waiting for the End&#8221; came on the radio, and I cried. I felt so helpless. That\u2019s all I was doing &#8211; waiting for the end, and I couldn\u2019t do anything. My beautiful son Charlie was going to die.<\/p>\n<p>I tried to accept reality while still enjoying the time I got with him. I talked to him and felt for his movements whenever I could. I\u2019d poke in different places on my belly and he\u2019d meet each poke of mine with a kick or punch of his own. I felt like he knew it was a game. He seemed to recognize Sean\u2019s voice &#8211; he\u2019d move around way more when we were together. Everywhere I went, I felt like I was taking Charlie on an adventure. I enjoyed every moment.<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"aligncenter size-large wp-image-77763\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/10\/mary-james-labor-charlie-700x512.jpg\" alt=\"mary-james-labor-charlie\" width=\"474\" height=\"347\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/mary-james-labor-charlie-700x512.jpg 700w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/mary-james-labor-charlie-300x220.jpg 300w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/mary-james-labor-charlie.jpg 738w\" sizes=\"(max-width: 474px) 100vw, 474px\" \/><\/p>\n<p>On September 17th, we checked into the hospital and they put a monitor on me so I could hear his heartbeat. He was awake, kicking the monitor throughout the morning. At 10:45 they took me to the operating room. I remember sitting on the operating table wanting to run away. I didn\u2019t want them to take Charlie out of me, I just wanted him to stay safe in me forever. Finally Sean was allowed in the room, and he came and held my hand.<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"aligncenter size-full wp-image-77765\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/10\/charlie-birth-1.jpg\" alt=\"charlie-birth-1\" width=\"759\" height=\"555\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-birth-1.jpg 759w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-birth-1-300x219.jpg 300w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-birth-1-700x512.jpg 700w\" sizes=\"(max-width: 759px) 100vw, 759px\" \/><\/p>\n<p>At 11:16, we heard Charlie\u2019s cries. We hadn\u2019t expected him to cry at all! His cry was loud and I couldn\u2019t help getting my hopes up. Sean brought him to me and I was amazed. He was a real little person\u00a0&#8211;\u00a0<em>my<\/em> little person. He had thick brown hair like his dad, and he was perfect. They placed him on my chest and I stroked his head and held his hand. His eyes opened a bit, and he took big breaths. He moved and made faces when Sean and I touched him. I held him close, and he drooled on my chest a little bit. They checked his heartbeat every few minutes, and each time it slowed down\u00a0slightly. He seemed to just fall asleep.<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"aligncenter size-full wp-image-77766\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/10\/charlie-birth-2.jpg\" alt=\"charlie-birth-2\" width=\"607\" height=\"425\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-birth-2.jpg 607w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-birth-2-300x210.jpg 300w\" sizes=\"(max-width: 607px) 100vw, 607px\" \/><\/p>\n<p>He lived for two hours after his birth, which was more than I was expecting. But it went by too fast.<\/p>\n<p>Nothing could have prepared me for how much I miss him. I have memories of him in every place I went during pregnancy. I wake up in the night and reach down to pat my belly only to realize that he\u2019s not there anymore.<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"aligncenter size-full wp-image-77772\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/10\/charlie.jpg\" alt=\"Mary James charlie\" width=\"675\" height=\"375\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie.jpg 675w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-300x167.jpg 300w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/charlie-672x372.jpg 672w\" sizes=\"(max-width: 675px) 100vw, 675px\" \/><\/p>\n<p>It\u2019s hard, and it\u2019s miserable, and it hurts more than you can imagine if you haven\u2019t been through it. But if I had it to do over again, I\u2019d make the same choices. I got to know him and love him, and I did everything I could for him, and that gives me peace.<\/p>\n<p>But every minute of every day, Charlie, we wish you were here.<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"aligncenter size-full wp-image-77770\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/10\/sean-mary-charlie.jpg\" alt=\"sean-mary-charlie\" width=\"708\" height=\"610\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/sean-mary-charlie.jpg 708w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/sean-mary-charlie-300x258.jpg 300w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/10\/sean-mary-charlie-700x603.jpg 700w\" sizes=\"(max-width: 708px) 100vw, 708px\" \/><\/p>\n<p><em>*Photos provided by Mary James. R<\/em><em>ead more and see more photos at Mary&#8217;s <a href=\"http:\/\/aquietgirlsthoughts.blogspot.com\/2015\/09\/charlies-story.html?m=0\">blog<\/a>.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>I remember so vividly the day I found out I was pregnant. Though I thought there was no way I was pregnant, I told myself I\u2019d just take one test to be sure. To be clear, it wasn\u2019t that I didn\u2019t want a baby. I wanted one\u00a0desperately, but knew it wasn\u2019t time. I was in [&hellip;]<\/p>\n","protected":false},"author":379,"featured_media":77761,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[2242],"tags":[5731,5464,5733,5732,4832],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Baby Charlie lived two hours after birth, but his life shares that every child is precious<\/title>\n<meta name=\"description\" content=\"&quot;He lived for two hours after his birth, which was more than I was expecting.... 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