{"id":63927,"date":"2015-05-21T11:32:37","date_gmt":"2015-05-21T15:32:37","guid":{"rendered":"\/news\/?p=63927"},"modified":"2021-05-05T18:43:22","modified_gmt":"2021-05-05T23:43:22","slug":"father-facial-deformity-says-daughter-condition-ill-tell-shes-beautiful","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/father-facial-deformity-says-daughter-condition-ill-tell-shes-beautiful\/","title":{"rendered":"Father with facial deformity says of his daughter with the same condition: &#8216;She&#8217;s beautiful&#8217;"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p>Like so many couples, Simon Moore and his wife, Vicky, wanted to have a baby. Unlike most couples, the Moores faced some tough decisions along the way\u2014 decisions that would have society judging and condemning them.<\/p>\n<p>Simon Moore, 30, has Treacher Collins syndrome, a genetic disorder that affects facial structure and hearing. Individuals with TC are born with craniofacial disfigurements, including the absence of cheekbones and eyes that droop.<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"size-full wp-image-63990 aligncenter\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_01.jpg\" alt=\"Alice Moore, 13 months who was born with the rare disease Treacher Collins Syndrome - her father Simon Moore, 30 also has the disease. Simon's wife Vicky Moore, 36 had IVF treatment to help conceive Alice as they so wanted to start a family together. See MASONS story MNFACE: A new dad with a severe facial disfigurement has defended his decision to have a baby daughter with the same condition. Simon Moore, 30, who is also profoundly deaf, has always been bullied and would hide indoors to avoid the stares of strangers. His life changed when his hearing dog Foggy, introduced him to Vicky, 36, at a sign language class five years ago and the pair married in 2012. They wanted a family so started IVF and made the decision to keep baby Alice when tests showed she also had the condition known as Treacher Collins Syndrome (TC). They had been offered a special IVF process which included state-of-the-art preimplantation genetic diagnosis to screen for the TC gene that Simon carried. The treatment would search for and destroy any embryos that carried the faulty gene. But after speaking to their family they opted for traditional IVF because they feared the screening process could leave them with no embryos.\" width=\"700\" height=\"700\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_01.jpg 700w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_01-150x150.jpg 150w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_01-300x300.jpg 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/p>\n<p><!--more-->Moore&#8217;s wife\u00a0had been sterilized after giving birth to three daughters during a previous marriage, and was unable to conceive naturally. Because of this, the couple\u00a0turned to IVF. They knew that PGD, or pre-implantation genetic diagnosis, was available, but they also knew that if their embryos tested positive for TC, they would be destroyed\u2014something they did not want to happen. Therefore, the couple opted out of genetic testing on the embryos and went ahead with the procedure, facing a 50\u00a0percent\u00a0chance that their child would also have TC.<\/p>\n<p>\u201cWe had to go through a year and a half of genetic counseling before we even decided to go ahead with trying for a baby,\u201d Vicky\u00a0Moore told <a href=\"http:\/\/www.dailymail.co.uk\/femail\/article-3086263\/Couple-baby-facial-disfigurement-defend-decision-despite-knowing-inherit-father-s-rare-condition.html\">the Daily Mail<\/a>. \u201cWe knew there was no guarantee how bad the TC would be\u2014 if the baby would have it at all. It could have been as minor as a slight hearing problem, to being born with no face whatsoever&#8230;Ultimately we didn\u2019t care if our baby had TC. Simon has the \u2018classic case\u2019 and he\u2019s amazing.\u201d<\/p>\n<p>At 16 weeks gestation, the couple learned that their preborn daughter did have TC. \u00a0The Moores were disappointed, but they were so happy to be expecting a baby and to hear her heartbeat that it didn\u2019t matter. They named their daughter Alice, and say that she is the most special thing on earth.<\/p>\n<p>Alice was born in February 2014, and her form of TC is considered mild. She has a high palate, a slight gap below her eyes which makes them droop, and malformed ears with difficulty hearing. People, including their neighbors, have weighed in on their decision to have a child with TC, calling the couple \u201ccruel,\u201d and even describing Alice as a gargoyle.<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"size-full wp-image-63994\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_21.jpg\" alt=\"Alice Moore, 13 months who was born with the rare disease Treacher Collins Syndrome - her father Simon Moore, 30 also has the disease. Simon's wife Vicky Moore, 36 had IVF treatment to help conceive Alice as they so wanted to start a family together. See MASONS story MNFACE: A new dad with a severe facial disfigurement has defended his decision to have a baby daughter with the same condition. Simon Moore, 30, who is also profoundly deaf, has always been bullied and would hide indoors to avoid the stares of strangers. His life changed when his hearing dog Foggy, introduced him to Vicky, 36, at a sign language class five years ago and the pair married in 2012. They wanted a family so started IVF and made the decision to keep baby Alice when tests showed she also had the condition known as Treacher Collins Syndrome (TC). They had been offered a special IVF process which included state-of-the-art preimplantation genetic diagnosis to screen for the TC gene that Simon carried. The treatment would search for and destroy any embryos that carried the faulty gene. But after speaking to their family they opted for traditional IVF because they feared the screening process could leave them with no embryos.\" width=\"700\" height=\"700\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_21.jpg 700w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_21-150x150.jpg 150w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_21-300x300.jpg 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"size-full wp-image-63993\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_18.jpg\" alt=\"Alice Moore, 13 months who was born with the rare disease Treacher Collins Syndrome. See MASONS story MNFACE: A new dad with a severe facial disfigurement has defended his decision to have a baby daughter with the same condition. Simon Moore, 30, who is also profoundly deaf, has always been bullied and would hide indoors to avoid the stares of strangers. His life changed when his hearing dog Foggy, introduced him to Vicky, 36, at a sign language class five years ago and the pair married in 2012. They wanted a family so started IVF and made the decision to keep baby Alice when tests showed she also had the condition known as Treacher Collins Syndrome (TC). They had been offered a special IVF process which included state-of-the-art preimplantation genetic diagnosis to screen for the TC gene that Simon carried. The treatment would search for and destroy any embryos that carried the faulty gene. But after speaking to their family they opted for traditional IVF because they feared the screening process could leave them with no embryos.\" width=\"700\" height=\"700\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_18.jpg 700w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_18-150x150.jpg 150w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_18-300x300.jpg 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/p>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"size-full wp-image-63992\" src=\"https:\/\/www.liveactionnews.org\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_07.jpg\" alt=\"Alice Moore, 13 months who was born with the rare disease Treacher Collins Syndrome. See MASONS story MNFACE: A new dad with a severe facial disfigurement has defended his decision to have a baby daughter with the same condition. Simon Moore, 30, who is also profoundly deaf, has always been bullied and would hide indoors to avoid the stares of strangers. His life changed when his hearing dog Foggy, introduced him to Vicky, 36, at a sign language class five years ago and the pair married in 2012. They wanted a family so started IVF and made the decision to keep baby Alice when tests showed she also had the condition known as Treacher Collins Syndrome (TC). They had been offered a special IVF process which included state-of-the-art preimplantation genetic diagnosis to screen for the TC gene that Simon carried. The treatment would search for and destroy any embryos that carried the faulty gene. But after speaking to their family they opted for traditional IVF because they feared the screening process could leave them with no embryos.\" width=\"700\" height=\"700\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_07.jpg 700w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_07-150x150.jpg 150w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2015\/05\/MASONS_TREACHER_COLLINS_07-300x300.jpg 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/p>\n<p>But no one knows better what it\u2019s like to grow up with such name calling as Simon\u00a0Moore. He has had to deal with people pointing at him, staring at him, and even stopping to take pictures of him. But he copes with it just fine, and believes Alice will, too. He tells her everyday how beautiful she is.<\/p>\n<p>\u201cPeople point and stare, and Simon often gets funny looks when he walks around the village with Alice,\u201d said Vicky\u00a0Moore. \u201cThey think because of the way he looks, he can\u2019t or shouldn\u2019t be able to cope with a baby&#8230;People literally stop dead in their tracks and point at her.\u201d<\/p>\n<p>The Moores know that people don\u2019t realize the pain they are causing, and they intend to raise Alice as they would any other child.<\/p>\n<p>\u201cMy mum and dad would never treat me any differently,\u201d explained Simon Moore. \u201cThey would never treat us any differently. If there was any new treatment, mum and dad would straight away tell me about it. They\u2019d say, &#8216;It\u2019s there if you want it. If you don\u2019t like it, leave it.&#8217;\u201d<\/p>\n<p>Alice is learning sign language with her father, who is a stay at home dad. She will eventually have surgery for a hearing aid. Her parents say they will leave any decisions regarding plastic surgery up to Alice when she is older. In the meantime, the family tries to educate others on TC, and why and how they made the decision to become parents.<\/p>\n<p>\u201cA lot of people don\u2019t understand what we\u2019ve been through,\u201d said Vicky Moore. \u201cThey think we\u2019re selfish or egotistical. But as long as people are saying bad things, we\u2019ll keep on going and making you aware. People who are saying nasty things \u2013 it can happen to you. So please broaden your minds. We\u2019re not hurting you.\u201d<\/p>\n<p><em>Editor&#8217;s Note: In vitro fertilization &#8211; or IVF &#8211; often leads to the destruction of human beings in the embryonic stage of life. Live Action and Live Action News do not support the use of IVF to create human life.\u00a0<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Like so many couples, Simon Moore and his wife, Vicky, wanted to have a baby. Unlike most couples, the Moores faced some tough decisions along the way\u2014 decisions that would have society judging and condemning them. Simon Moore, 30, has Treacher Collins syndrome, a genetic disorder that affects facial structure and hearing. Individuals with TC [&hellip;]<\/p>\n","protected":false},"author":62,"featured_media":63991,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[4],"tags":[3719,3718],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Father with facial deformity says of his daughter with the same condition: &#039;I&#039;ll tell her she&#039;s beautiful&#039;<\/title>\n<meta name=\"description\" content=\"Like so many couples, Simon Moore and his wife, Vicky, wanted to have a baby. 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