{"id":51941,"date":"2014-07-20T18:00:43","date_gmt":"2014-07-20T22:00:43","guid":{"rendered":"\/news\/?p=51941"},"modified":"2014-07-21T17:01:28","modified_gmt":"2014-07-21T21:01:28","slug":"doctors-respond-to-parents-of-down-syndrome-newborns-with-cruelty-and-callousness","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/doctors-respond-to-parents-of-down-syndrome-newborns-with-cruelty-and-callousness\/","title":{"rendered":"Doctors respond to parents of Down syndrome newborns with cruelty and callousness"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p>LifeNews <a href=\"http:\/\/www.lifenews.com\/2014\/07\/17\/no-wonder-many-babies-with-Down-syndrome-are-aborted-doctors-abandoned-us-when-ours-was-born\/\" target=\"_blank\">recently published an article by Mark Leach<\/a> about what happened when his baby was born with Down syndrome. Leach describes how he and his wife felt abandoned by the medical establishment and how the hospital gave them outdated and scant information about Down syndrome.<\/p>\n<p>In response to his experience, and the experiences of many other Down syndrome parents, he has become the bioethics specialist at the <a href=\"http:\/\/www.downsyndromediagnosis.org\/\" target=\"_blank\">National Center for Prenatal &amp; Postnatal Down Syndrome Resources<\/a>, and works to get positive, life-affirming information into the hands of new Down syndrome parents and those who go through prenatal testing for Down syndrome. Leach says:<\/p>\n<blockquote><p>Parents have long described receiving the [Down syndrome] diagnosis negatively. A study of moms reported awful stories both pre- and post-natally. A study just last year reported that parents have a negative experience by a ratio of 2.5 to 1\u2013so for every 100 sets of parents who had a positive experience with their health team, there were 250 who had a negative one.<\/p><\/blockquote>\n<p><!--more-->In the book <em>Testing Women, Testing the Fetus: the Social Impact of Amniocentesis in America<\/em>, researcher Rayna Rapp documents three such negative experiences.<\/p>\n<p>One mother, whose child with Down syndrome, Amelia, was four at the time of the interview, related the following:<\/p>\n<blockquote><p>So they diagnosed Amelia right away, on the delivery table. She was barely out, I barely got a chance to catch my breath or marvel at my first baby when the doctor pours this bad news all over us. \u201cShe\u2019s got Down syndrome,\u201d he says to us, very coldly. And after he tells us about blood testing and confirmations and all this stuff, we say to him, \u201cBut what does this <em>mean<\/em>? What should we <em>expect<\/em>?\u201d And just as coldly he says, \u201cDon\u2019t expect much. Maybe she\u2019ll grow up to be an elevator operator. Don\u2019t expect much.\u201d We clung to each other and cried. (Rapp 263)<\/p><\/blockquote>\n<p><img decoding=\"async\" loading=\"lazy\" class=\"alignright wp-image-17297 \" style=\"margin: 15px;\" src=\"\/news\/wp-content\/uploads\/2012\/05\/downs-300x200.jpg\" alt=\"h down syndrome\" width=\"266\" height=\"177\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2012\/05\/downs-300x200.jpg 300w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2012\/05\/downs.jpg 480w\" sizes=\"(max-width: 266px) 100vw, 266px\" \/>This appalling treatment no doubt added to the confusion and grief that the parents felt over finding out that their baby would face unforeseen challenges in life. If this doctor was so callous towards them after the birth of their baby, one wonders how he would treat his patients who tested positive for a Down syndrome child and were still pregnant. \u00a0Would he push them towards abortion?<\/p>\n<p>Another mother spoke about how angry her doctor was when she gave birth to a baby with Down syndrome:<\/p>\n<blockquote><p>My doctor was so angry with me. He couldn\u2019t believe I didn\u2019t take that test. \u201cHow could you let this happen?\u201d He yelled at me. \u201cYou\u2019re 40!\u201d But I think something else: even though he\u2019s mentally retarded, he could be a good person\u2026 It\u2019s just like finding out you have a new job. You just do it, and you accept it, that\u2019s all there is to it. \u00a0(Rapp 263)<\/p><\/blockquote>\n<p>Even more heartless was the reaction of a third doctor, to another couple whose baby had Down syndrome:<\/p>\n<blockquote><p>She was tiny, but she was great, like she was just the cutest thing. And then my husband comes in, and he looked weird and immediately he said, \u201cThe baby, something is wrong\u2026\u201d And all I could think of was that she\u2019s blind, I guess that was probably the worst thing I could ever have imagined. But the doctor had just called him and told him that Rose was a Mongoloid. We took a half hour to get it out of him, like he couldn\u2019t finish telling me the story, and then the doctor came in and said, \u201cWhat your husband just told you is right.\u201d He was, like, very down on the whole thing, very negative. He said, \u201cThe only blessing is that they don\u2019t tend to live very long.\u201d So he thought it would be a good thing if our new baby would die. What more can I say? (Rapp 266 \u2013 267)<\/p><\/blockquote>\n<p>These responses by doctors show how vitally important the work of the <a href=\"http:\/\/www.downsyndromediagnosis.org\/\" target=\"_blank\">National Center for Prenatal &amp; Postnatal Down Syndrome Resources<\/a> is. Pro-lifers should support families with children who have Down syndrome or other disabilities, and support organizations that help them.<\/p>\n<p>Source: Rayna Rapp <em>Testing Women, Testing the Fetus: the Social Impact of Amniocentesis in America<\/em> (New York: Routledge, 1999)<\/p>\n<p><a href=\"https:\/\/www.liveaction.org\/donation\/\">Live Action News relies completely on the generosity of our donors to keep us going. Please donate today!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>LifeNews recently published an article by Mark Leach about what happened when his baby was born with Down syndrome. Leach describes how he and his wife felt abandoned by the medical establishment and how the hospital gave them outdated and scant information about Down syndrome. In response to his experience, and the experiences of many [&hellip;]<\/p>\n","protected":false},"author":153,"featured_media":50529,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[4],"tags":[429],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Doctors respond to parents of Down syndrome newborns with cruelty and callousness - Live Action News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/archive.liveaction.org\/news\/doctors-respond-to-parents-of-down-syndrome-newborns-with-cruelty-and-callousness\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Doctors respond to parents of Down syndrome newborns with cruelty and callousness - Live Action News\" \/>\n<meta property=\"og:description\" content=\"LifeNews recently published an article by Mark Leach about what happened when his baby was born with Down syndrome. 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