{"id":326138,"date":"2025-02-10T15:15:31","date_gmt":"2025-02-10T21:15:31","guid":{"rendered":"https:\/\/www.liveaction.org\/news\/?p=326138"},"modified":"2025-02-10T08:07:57","modified_gmt":"2025-02-10T14:07:57","slug":"man-assisted-suicide-misdiagnosed","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/man-assisted-suicide-misdiagnosed\/","title":{"rendered":"Man who rushed for approval for assisted suicide was misdiagnosed"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p>(<a href=\"https:\/\/righttolife.org.uk\/news\/man-who-signed-up-to-dignitas-after-misdiagnosis-of-motor-neurone-disease-speaks-out-against-assisted-suicide-bill\" target=\"_blank\" rel=\"noopener\">Right to Life UK<\/a>) \u2014 A man, who initiated the assisted suicide process by contacting an assisted suicide clinic after doctors misdiagnosed him with motor neurone disease, has shared the serious concerns he has about the Leadbeater assisted suicide Bill under which he believes he would have qualified for an assisted suicide.<\/p>\n<p>Peter Sefton-Williams, 71, a retired journalist and Marketing Manager, was <a class=\"__mPS2id\" href=\"https:\/\/www.gbnews.com\/health\/peter-sefton-williams-doctor-misdiagnosis-motor-neurone-disease#:~:text=there%20is%20no%20doubt%20whatsoever%20that%20you%20have%20Motor%20Neurone%20Disease%20and%20that%20you%20typically%20can%20live%20between%20one%20and%20a%20half%20to%20four%20or%20five%20years.\" target=\"_blank\" rel=\"noopener\">told<\/a> by his doctor, &#8220;There is no doubt whatsoever that you have Motor Neurone Disease and that you typically can live between one and a half to four or five years,&#8221; and was also told to \u201cnot make any plans past six months\u2019 time.&#8221; As a result, Sefton-Williams <a class=\"__mPS2id\" href=\"https:\/\/www.thetimes.com\/uk\/healthcare\/article\/the-doctors-got-it-wrong-i-would-have-killed-myself-and-i-wasnt-ill-r9ns68z03#:~:text=Absolutely%20terrified\" target=\"_blank\" rel=\"noopener\">was<\/a>\u00a0\u201cabsolutely terrified\u201d and immediately began making plans to end his life at the Swiss assisted suicide clinic, Dignitas. He even scoped out a notorious suicide spot near where he lived in case his plans did not work out.<\/p>\n<p>\u201cThe day after the diagnosis, I contacted Dignitas, because they said it would take six months to do the paperwork. So I thought, \u2018I have to do this in a hurry,'&#8221; he <a class=\"__mPS2id\" href=\"https:\/\/www.gbnews.com\/health\/peter-sefton-williams-doctor-misdiagnosis-motor-neurone-disease#:~:text=The%20day%20after%20the%20diagnosis%2C%20I%20contacted%20Dignitas%2C%20because%20they%20said%20it%20would%20take%20six%20months%20to%20do%20the%20paperwork.%20So%20I%20thought%2C%20I%20have%20to%20do%20this%20in%20a%20hurry\" target=\"_blank\" rel=\"noopener\">said<\/a>.<\/p>\n<p>As his panic subsided, Sefton-Williams abandoned these plans, and he began to notice his symptoms were not becoming worse but were actually improving. After seeking the opinion of a third specialist, he was told, \u201cThis is not Motor Neurone Disease, this is Multifocal Motor Neuropathy.&#8221;<\/p>\n<p>\u201cIt\u2019s very rare, it mimics the early stages of Motor Neurone Disease. But it\u2019s a mild disease, nobody dies of it, and it\u2019s largely curable,&#8221; he added.<\/p>\n<p><strong>Misdiagnosis was \u201cthe most traumatic experience imaginable\u201d<\/strong><\/p>\n<p>Sefton-Williams is now speaking out against Kim Leadbeater\u2019s assisted suicide Bill, which he is concerned could lead to unnecessary deaths in cases of misdiagnosis like his. He\u00a0<a class=\"__mPS2id\" href=\"https:\/\/www.thetimes.com\/uk\/healthcare\/article\/the-doctors-got-it-wrong-i-would-have-killed-myself-and-i-wasnt-ill-r9ns68z03#:~:text=%E2%80%9CI%20could%20realistically%20have%20been%20permitted%20an%20assisted%20death%20while%20suffering%20from%20a%20mild%2C%20and%20hopefully%20curable%2C%20auto%2Dimmune%20disease%2C%E2%80%9D%20he%20said.\" target=\"_blank\" rel=\"noopener\">has outlined<\/a> that he would have likely been granted an assisted suicide under the Leadbeater Bill, which requires the approval of two doctors, as he received his diagnosis from two of the country\u2019s top specialists. \u201cI could realistically have been permitted an assisted death while suffering from a mild, and hopefully curable, auto-immune disease,&#8221; he <a href=\"https:\/\/www.thetimes.com\/uk\/healthcare\/article\/the-doctors-got-it-wrong-i-would-have-killed-myself-and-i-wasnt-ill-r9ns68z03\" target=\"_blank\" rel=\"noopener\">said<\/a>.<\/p>\n<p>\u201cI backed off but other people, if it were available, I think it\u2019s highly likely they would do it. I absolutely understand, and I think the people proposing it have good intentions. I personally think the complications of it are too great ever to introduce it.&#8221;<\/p>\n<p>\u201cBut there seems to be an assumption that the doctors at least are certain about what disease you have.&#8221;<\/p>\n<p>\u201cDoctors are fallible. It\u2019s no use saying they\u2019re the kind of gold standard and will always get it right, because they don\u2019t always get it right. As my case shows, I could have thought that was a way out and I would now be dead. Whereas, as far as I can tell, there\u2019s very little wrong with me,&#8221; he said.<\/p>\n<p>Analysis of the 201 UK residents with a neurological diagnosis who chose assisted suicide in Switzerland between 2005-2022 showed that 79 of them suffered from motor neurone disease.<\/p>\n<p>Sefton-Williams told The Times these figures could be repeated if the Leadbeater Bill becomes law. \u201cIt is likely that, given the horrendous symptoms and certain outcome, this would be replicated in the UK if the [assisted suicide] Bill became law.&#8221;<\/p>\n<p>He added, \u201cAnd if I had been insistent on end-of-life treatment, people would have said, \u2018Well, he wanted a dignified death. It was his choice to end his own life on his terms.'&#8221;<\/p>\n<p>\u201cI would have killed myself and nobody would have known that in fact I wasn\u2019t ill at all. It seems a key point in all of this.&#8221;<\/p>\n<p><strong>\u2018I could have thought that was a way out and I would now be dead\u2019\u00a0<\/strong><\/p>\n<p>Senior medics have shared concerns about the difficulties of accurately predicting the prognosis of an illness. Baroness Finlay of Llandaff, a former professor of palliative medicine said, \u201cPredicting life expectancy is impossible\u2026 I have known people who live well and actively for years after they were thought to have no more than a few weeks to live.&#8221;<\/p>\n<p>Professor Katherine Sleeman, a specialist in palliative care, told\u00a0<a href=\"https:\/\/www.telegraph.co.uk\/politics\/2024\/10\/15\/assisted-dying-bill-risks-killing-people-three-years-live\/\" target=\"_blank\" rel=\"noopener\">The Telegraph<\/a>, \u201cIt is not possible to accurately determine someone\u2019s prognosis as a number of months, say six months or 12 months.&#8221;<\/p>\n<p>\u201cAs a doctor, patients do ask me, \u2018How long have I got left?\u2019 and I would never say, \u2018Six months or fewer.\u2019 I might say, \u2018Your prognosis is probably measured in months, or \u201clong months.&#8221;&#8216; That\u2019s as precise as I would be.&#8221;<\/p>\n<p>According to recent\u00a0<a href=\"https:\/\/www.telegraph.co.uk\/news\/2025\/01\/21\/assisted-dying-row-terminally-ill-patients-live-longer\/\" target=\"_blank\" rel=\"noopener\">data<\/a>\u00a0obtained by The Telegraph through a freedom of information request, a fifth of people claiming benefits who were thought to have six months left to live were still alive three years later.<\/p>\n<p>The figures are important because the\u00a0<a href=\"https:\/\/bills.parliament.uk\/bills\/3774\" target=\"_blank\" rel=\"noopener\">Terminally Ill Adults (End of Life) Bill<\/a>, voted through at Second Reading on Friday 29 November, applies to adults who are thought to have fewer than six months to live.<\/p>\n<p>As Kim Leadbeater\u2019s\u00a0<a href=\"https:\/\/bills.parliament.uk\/bills\/3774\" target=\"_blank\" rel=\"noopener\">Terminally Ill Adults (End of Life) Bill<\/a>\u00a0proceeds through its next stage, and following the publication of the Telegraph data, Dr Matthew Dor\u00e9, the honorary secretary of the Association for Palliative Medicine, warned of the dangers of putting too much faith in the six-month provision in the Leadbeater assisted suicide Bill. He\u00a0<a href=\"https:\/\/www.telegraph.co.uk\/news\/2025\/01\/21\/assisted-dying-row-terminally-ill-patients-live-longer\/\" target=\"_blank\" rel=\"noopener\">said<\/a>, \u201cUnder assisted dying laws \u2026 lives would have been tragically cut short \u2013 and we would never have known.&#8221;<\/p>\n<p>\u201cCan we accept a reality where one in five people might miss three more Christmases with loved ones due to the inherent uncertainty of medical prognoses?\u201d<\/p>\n<p>\u201cThis stark truth exposes the misconception that prognosis is a safeguard: in practice, it comes down to the doctor\u2019s discretion. How can you trust a so-called \u2018safeguard\u2019 which consistently and dramatically fails in being safe?\u201d<\/p>\n<p>Spokesperson for Right To Life UK, Catherine Robinson, said: \u201cPeter Sefton-Williams\u2019 astonishing story of misdiagnosis should serve as a stark warning. It is a real-life example of why legalising assisted suicide would be so dangerous.&#8221;<\/p>\n<p>\u201cIf assisted suicide had been legal, he would probably be dead now. His is an entirely preventable death and cases like this are a sadly predictable consequence of this Bill. MPs must vote it down at Third Reading.&#8221;<\/p>\n<p><em>Editor&#8217;s note: This article appeared at <a href=\"https:\/\/righttolife.org.uk\/news\/man-who-signed-up-to-dignitas-after-misdiagnosis-of-motor-neurone-disease-speaks-out-against-assisted-suicide-bill\" target=\"_blank\" rel=\"noopener\">Right to Life UK<\/a> and is reprinted here with permission.<\/em><\/p>\n<p><a href=\"https:\/\/actnow.io\/Vety0KE\" target=\"_blank\" rel=\"noopener\"><img decoding=\"async\" loading=\"lazy\" class=\"alignnone size-large wp-image-325597 aligncenter\" src=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2025\/01\/LA25DefundPP_EmailBannerAd-02-1-700x251.png\" alt=\"\" width=\"700\" height=\"251\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2025\/01\/LA25DefundPP_EmailBannerAd-02-1-700x251.png 700w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2025\/01\/LA25DefundPP_EmailBannerAd-02-1-300x107.png 300w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2025\/01\/LA25DefundPP_EmailBannerAd-02-1-768x275.png 768w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2025\/01\/LA25DefundPP_EmailBannerAd-02-1-500x179.png 500w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2025\/01\/LA25DefundPP_EmailBannerAd-02-1.png 1167w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>(Right to Life UK) \u2014 A man, who initiated the assisted suicide process by contacting an assisted suicide clinic after doctors misdiagnosed him with motor neurone disease, has shared the serious concerns he has about the Leadbeater assisted suicide Bill under which he believes he would have qualified for an assisted suicide. Peter Sefton-Williams, 71, [&hellip;]<\/p>\n","protected":false},"author":669,"featured_media":326141,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[7077,5,3473],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Man who rushed for approval for assisted suicide was misdiagnosed<\/title>\n<meta name=\"description\" content=\"\u201cThe day after the diagnosis, I contacted Dignitas... it would take six months to do paperwork. 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