{"id":300748,"date":"2023-10-27T14:40:47","date_gmt":"2023-10-27T19:40:47","guid":{"rendered":"https:\/\/www.liveaction.org\/news\/?p=300748"},"modified":"2023-11-01T22:15:41","modified_gmt":"2023-11-02T03:15:41","slug":"mom-fights-baby-life-limiting-diagnosis","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/mom-fights-baby-life-limiting-diagnosis\/","title":{"rendered":"Mom fights for baby with life-limiting diagnosis, who is now thriving: &#8216;I didn&#8217;t think twice&#8217;"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p><span style=\"font-weight: 400;\">When Florida mom Andi Mahoney was 20 weeks pregnant, she was given devastating news: her preborn daughter, Emmie, had a condition called <\/span><a href=\"https:\/\/www.nationwidechildrens.org\/conditions\/bilateral-renal-agenesis#:~:text=Bilateral%20Renal%20Agenesis%3F-,Bilateral%20renal%20agenesis%20(BRA)%20is%20a%20rare%20and%20life%2D,the%20liquid%20around%20the%20baby).\"><span style=\"font-weight: 400;\">bilateral renal agenesis<\/span><\/a><span style=\"font-weight: 400;\">. The condition meant Emmie<\/span><span style=\"font-weight: 400;\"> didn\u2019t have kidneys \u2014 and therefore, doctors said, had no chance of surviving past birth.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cIt\u2019s universally fatal,\u201d Mahoney told <\/span><a href=\"https:\/\/www.11alive.com\/article\/life\/heartwarming\/emmie-milton-georgia-survives-rare-condition\/85-27487fd6-06ae-4a28-aed1-779c95d62c26\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">11 Alive<\/span><\/a><span style=\"font-weight: 400;\">. \u201cSo, we grieved. We thought we were losing our baby, and we were told that there&#8217;s no hope<\/span><i><span style=\"font-weight: 400;\">.<\/span><\/i><span style=\"font-weight: 400;\">\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Despite the life-limiting diagnosis, Mahoney refused to accept that nothing could be done. She began searching for a specialist willing to help her and her daughter, a process she said took weeks. Eventually, she found <\/span><span style=\"font-weight: 400;\">Dr. Ruben Quintero with the Fetal Institute in Miami, a six-hour drive from her Jacksonville home. Mahoney began traveling to see Quintero for infusions of fluids that would increase the chance of Emmie\u2019s survival.<\/span><\/p>\n<p style=\"text-align: center;\"><iframe loading=\"lazy\" style=\"border: 1px solid #e6e6e6;\" src=\"https:\/\/www.11alive.com\/embeds\/video\/responsive\/85-aec8a197-8a9d-4489-851b-7e856860c108\/iframe\" width=\"640\" height=\"360\" allowfullscreen=\"allowfullscreen\"><\/iframe>\n<\/p>\n<p><span style=\"font-weight: 400;\">&#8220;I kept traveling to Miami to get more, to keep Emmie alive,&#8221; Mahoney said. &#8220;My baby needed fluid to breathe. By the time I got to the 34-week mark, I had an unnatural rupture.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Due to the rupture, Mahoney had to act fast to find a hospital that could help her. She found one in Stanford, California, that had previous experience helping babies with bilateral renal agenesis.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">&#8220;I hopped on a flight from Jacksonville to California with my membranes ruptured,&#8221; Mahoney <\/span><a href=\"https:\/\/www.usatoday.com\/story\/news\/nation\/2023\/10\/22\/bilateral-renal-agenesis-survival-story\/71247489007\/\"><span style=\"font-weight: 400;\">said<\/span><\/a><span style=\"font-weight: 400;\">. &#8220;I wanted to go somewhere that would deliver me my Emmie. Also, they gave me hope that she would live.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Emmie was whisked away for surgery immediately after birth, and though she survived, her outlook was still grim. Eventually, when she was six months old she was airlifted to <\/span><span style=\"font-weight: 400;\">Children\u2019s Healthcare of Atlanta for treatment. Her family even moved to Georgia to ensure Emmie could get the care she needed.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Ultimately, it became apparent that Emmie would need a kidney transplant. Mahoney said she was thrilled to learn she was a match for her daughter.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">&#8220;I received the best news of my life when I found out we had matching blood types and that I was approved for the surgery,&#8221; Mahoney told <\/span><a href=\"https:\/\/www.usatoday.com\/story\/news\/nation\/2023\/10\/22\/bilateral-renal-agenesis-survival-story\/71247489007\/\"><span style=\"font-weight: 400;\">USA Today<\/span><\/a><span style=\"font-weight: 400;\">. &#8220;I didn&#8217;t think twice. I knew I was giving my kidney to Emmie.&#8221;<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Thanks to her family\u2019s willingness to sacrifice, travel the country, and advocate for her needs, Emmie has defied the predictions and is now a happy toddler.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cShe is doing fabulous. I can go on and on,\u201d <\/span><a href=\"https:\/\/www.11alive.com\/article\/life\/heartwarming\/emmie-milton-georgia-survives-rare-condition\/85-27487fd6-06ae-4a28-aed1-779c95d62c26\"><span style=\"font-weight: 400;\">said<\/span><\/a><span style=\"font-weight: 400;\"> one of her medical providers, Dr. Rouba Garro. \u201cIt&#8217;s hard not to fall in love with her. Even when she&#8217;s hurting, she makes sure that she smiles and brings joy and happiness around her. And now after transplant, it&#8217;s amazing to watch the growth. She&#8217;s thriving.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cShe\u2019s just spreading light and joy and happiness,\u201d said Mahoney. \u201cAnd I know she&#8217;s supposed to be here. She&#8217;s my little miracle. She&#8217;s amazing.\u201d<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>When Florida mom Andi Mahoney was 20 weeks pregnant, she was given devastating news: her preborn daughter, Emmie, had a condition called bilateral renal agenesis. The condition meant Emmie didn\u2019t have kidneys \u2014 and therefore, doctors said, had no chance of surviving past birth. \u201cIt\u2019s universally fatal,\u201d Mahoney told 11 Alive. \u201cSo, we grieved. We [&hellip;]<\/p>\n","protected":false},"author":607,"featured_media":300753,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[9455,3473,9459],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Mom fights for baby with life-limiting diagnosis, who is now thriving: &#039;I didn&#039;t think twice&#039;<\/title>\n<meta name=\"description\" content=\"Despite the life-limiting diagnosis, Andi Mahoney refused to accept that nothing could be done for her daughter Emmie.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/archive.liveaction.org\/news\/mom-fights-baby-life-limiting-diagnosis\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" 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