{"id":298754,"date":"2023-09-15T18:37:25","date_gmt":"2023-09-15T23:37:25","guid":{"rendered":"https:\/\/www.liveaction.org\/news\/?p=298754"},"modified":"2023-09-14T17:17:58","modified_gmt":"2023-09-14T22:17:58","slug":"study-doctors-down-syndrome-diagnoses-negativity","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/study-doctors-down-syndrome-diagnoses-negativity\/","title":{"rendered":"Study reveals doctors still present Down syndrome diagnoses with negativity"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p><span style=\"font-weight: 400;\">A <\/span><a href=\"https:\/\/www.sciencedirect.com\/science\/article\/abs\/pii\/S1936657423000869?dgcid=author#bib14\"><span style=\"font-weight: 400;\">study<\/span><\/a><span style=\"font-weight: 400;\"> recently published in the Journal of Disability and Health shows that despite decades of positive societal progress for people with Down syndrome, the majority of doctors have a negative bias when informing parents of this prenatal diagnosis. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">The study surveyed parents of children with Down syndrome about their experience of prenatal testing. Most said that the diagnosis was presented in a negative light, with an \u201cI\u2019m sorry,\u201d and little information given about the condition. The study found that often medical providers have \u201can implicit bias when [making assumptions about] life with a disability like Down syndrome.\u201d This could be a contributing factor to the high rate of abortion chosen by parents who receiving a diagnosis of Down syndrome during prenatal testing.<\/span><\/p>\n<p>Amy Julia Becker, a well known Christian author, wrote about this study and her own experience of having a child with Down Syndrome in <a href=\"https:\/\/time.com\/6312341\/prenatal-diagnosis-down-syndrome-bias\/\"><span style=\"font-weight: 400;\">an article for Time Magazine<\/span><\/a><span style=\"font-weight: 400;\">. Becker and her husband found out their daughter Penny had Down syndrome when she was born, not as a result of prenatal testing. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">She recounts how the doctor told her husband: \u201cI\u2019m sorry,\u201d the doctor said. \u201cYour baby has the features of Down syndrome.\u201d They were sent home with little information on what this meant and Penny\u2019s prognosis. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Other parents have reported similar experiences, such as <\/span><a href=\"https:\/\/archive.liveaction.org\/news\/dad-down-syndrome-positivity-diagnosis\/\"><span style=\"font-weight: 400;\">Mark Cronin<\/span><\/a><span style=\"font-weight: 400;\">, father of John Cronin. They were also given the \u201cbad news\u201d of a Down syndrome diagnosis when he was born \u2014 and no other information.<\/span><\/p>\n<p style=\"text-align: center;\"><iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/d6GewCpuC30?si=vZaMAwe9oMb9NOIh\" width=\"640\" height=\"355\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\">\ufeff<\/span><\/iframe>\n<\/p>\n<p><span style=\"font-weight: 400;\">Becker&#8217;s daughter Penny is now 18 and thriving, but unfortunately little has changed since her birth in the way of how doctors approach a Down syndrome diagnosis. This is similar to the experiences of parents who receive this diagnosis prenatally as well. Often the focus is simply on all the medical conditions and negative outcomes that can potentially come with Down syndrome. However, most families who have a child with Down syndrome will say what a blessing it has been. Besides this, medical advances have increased the life expectancy for people with Down syndrome, and most lead normal lives.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">There are efforts being made to change this negative attitude towards disability and teach doctors how to present an unbiased diagnosis. Becker\u2019s family participated in a program where they had medical students over for dinner so they could see what life was actually like for a child with Down syndrome. They realized it was not a death sentence. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Becker also references <\/span><a href=\"https:\/\/www.lettercase.org\/\"><span style=\"font-weight: 400;\">Lettercase<\/span><\/a><span style=\"font-weight: 400;\">, a project to produce information about different genetic conditions. The <\/span><a href=\"https:\/\/understandingdownsyndrome.org\/\"><span style=\"font-weight: 400;\">pamphlet for Down syndrome<\/span><\/a><span style=\"font-weight: 400;\"> includes positive statements like: \u201cWhile people with Down syndrome do face challenges, recent advances in healthcare, education, and public attitudes have greatly improved their lives.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Becker has written many times <\/span><a href=\"https:\/\/archive.liveaction.org\/news\/prenatal-testing-abortion-children\/\"><span style=\"font-weight: 400;\">against abortion<\/span><\/a><span style=\"font-weight: 400;\"> and her concern that so many parents who receive a prenatal diagnosis choose to abort. In this recent article she points out that: \u201cthe study found that while the majority of doctors offered the options, far fewer provided\u2026 vulnerable women important information in the face of what is often an intense and relatively urgent decision.\u201d <\/span><\/p>\n<p><span style=\"font-weight: 400;\">When Down syndrome is presented as a terrible condition which will only lead to lifelong suffering, it is not surprising that many choose abortion in a rushed decision.<\/span><\/p>\n<p><a href=\"https:\/\/www.liveaction.org\/stop-planned-parenthood\/?utm_campaign=sex_ed_petition&amp;utm_medium=LAN&amp;utm_source=website\"><img decoding=\"async\" loading=\"lazy\" class=\"aligncenter size-large wp-image-295788\" src=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2023\/08\/Stop-PP-From-Sexualizing-Kids970x250-blur-700x180.jpg\" alt=\"\" width=\"700\" height=\"180\" srcset=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2023\/08\/Stop-PP-From-Sexualizing-Kids970x250-blur-700x180.jpg 700w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2023\/08\/Stop-PP-From-Sexualizing-Kids970x250-blur-300x77.jpg 300w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2023\/08\/Stop-PP-From-Sexualizing-Kids970x250-blur-768x198.jpg 768w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2023\/08\/Stop-PP-From-Sexualizing-Kids970x250-blur-500x129.jpg 500w, https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2023\/08\/Stop-PP-From-Sexualizing-Kids970x250-blur.jpg 970w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A study recently published in the Journal of Disability and Health shows that despite decades of positive societal progress for people with Down syndrome, the majority of doctors have a negative bias when informing parents of this prenatal diagnosis. The study surveyed parents of children with Down syndrome about their experience of prenatal testing. Most [&hellip;]<\/p>\n","protected":false},"author":678,"featured_media":279068,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[4,3473],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Study reveals doctors still present Down syndrome diagnoses with negativity<\/title>\n<meta name=\"description\" content=\"Despite decades of progress for people with Down syndrome, most doctors have a negative bias when informing parents of a prenatal diagnosis.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/archive.liveaction.org\/news\/study-doctors-down-syndrome-diagnoses-negativity\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" 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