{"id":282837,"date":"2023-01-06T10:44:14","date_gmt":"2023-01-06T16:44:14","guid":{"rendered":"https:\/\/www.liveaction.org\/news\/?p=282837"},"modified":"2023-01-05T15:26:30","modified_gmt":"2023-01-05T21:26:30","slug":"baby-trisomy-18-die-enjoys-life","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/baby-trisomy-18-die-enjoys-life\/","title":{"rendered":"Baby girl with Trisomy 18 was almost left to die, but today she &#8216;enjoys her life&#8217;"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p>Shout My Story recently released another <a href=\"https:\/\/vimeo.com\/782636951\/26294c3c62\" target=\"_blank\" rel=\"noopener\">video<\/a>, this time profiling Sajjona, a five-year-old girl living with Trisomy 18, and how she was almost left to die solely due to her disability.<\/p>\n<p>Sajjona\u2019s mother, Heidi, conceived at age 48 \u2014\u00a0and while the news was unexpected, the whole family was \u201cvery, very excited, very happy.\u201d And then at Heidi\u2019s first prenatal appointment, they received unexpected news.<\/p>\n<p>\u201c[The doctor said] \u2018There\u2019s something wrong with your baby,'&#8221; Heidi recalled. &#8220;&#8216;I don\u2019t know what it is. It could be Down syndrome, it could be Trisomy 18, or another trisomy.\u2019\u201d<\/p>\n<p>Suddenly, Heidi and her husband felt their excitement crumbling around them. \u201cWe were devastated and we absolutely both just cried, because everything changed,&#8221; she said. &#8220;The whole future of the child has changed.\u201d The doctor then told them they should get an abortion, because they deserved a &#8220;good life.&#8221;<\/p>\n<p style=\"text-align: center;\"><iframe loading=\"lazy\" title=\"vimeo-player\" src=\"https:\/\/player.vimeo.com\/video\/782636951?h=26294c3c62\" width=\"640\" height=\"360\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe>\n<\/p>\n<p>But Heidi and her husband, while sad about their baby\u2019s potential medical issues, were unwavering in their commitment to protect their preborn child\u2019s life. \u201cGod put this baby here for a reason, and we\u2019re going to have this baby,&#8221; Heidi said she responded. &#8220;We will love her for exactly who she is.\u201d<\/p>\n<p>Because Heidi and her husband opted against prenatal testing after the doctor\u2019s original declaration, they didn\u2019t have an official Trisomy 18 diagnosis when Sajjona was born. The medical staff at first cared for Sajjona as they would any other sick newborn. \u201cThey worked as hard as they could on her, thinking she was just a child with a disability, maybe, but they didn\u2019t know what [disability],&#8221; Heidi said.<\/p>\n<p><em><a href=\"https:\/\/give.liveaction.org\/general-donation\/?utm_source=lan&amp;utm_medium=display&amp;utm_campaign=monthly&amp;utm_content=article\" target=\"_blank\" rel=\"noopener\">For every dollar given, 34 more people can be reached with the truth about abortion. Will you join us in this life-saving work as a monthly donor today?<\/a><\/em><\/p>\n<p>But things changed after a family meeting, when they received the official Trisomy 18 diagnosis. Heidi described the change in Sajjona\u2019s treatment as, \u201cbasically there was a black cloud over Sajjona\u2019s bed, and she was pushed in a corner because \u2018that was the baby that was gonna die.\u2019\u201d<\/p>\n<p>Heidi recalled one harrowing moment when Sajjona\u2019s pulse oximetry (oxygen saturation) reading dropped to just 5%, whereas 95-100% is normal in a newborn. Though little Sajjona was clearly in distress and her skin changed color, the nurse caring for her refused to intervene, telling Heidi unconcernedly, \u201cShe\u2019s like this all the time.\u201d<\/p>\n<p>But Heidi saw the change in her daughter and recognized, \u201cShe went stiff and changed to a color. She almost died.\u201d<\/p>\n<p>Heidi and many other horrified parents have learned that without the parents\u2019 knowledge or consent, health care teams can place Do Not Resuscitate (DNR) orders in the medical charts of very ill children deemed \u201cincompatible with life\u201d \u2014 which Shout My Story founder Cynthia Morales points out \u201cis not a medical diagnosis.\u201d<\/p>\n<p>Morales previously <a href=\"https:\/\/archive.liveaction.org\/news\/unworthy-life-nazi-ideology-assisted-death\/\" target=\"_blank\" rel=\"noopener\">told Live Action News<\/a> that the \u201cstandard medical care for kids with severe, life-limiting syndromes is to let them die\u201d if medical emergencies arise after birth, even though \u201csome of these babies can live for years if they\u2019re given proper medical care.\u201d<\/p>\n<p>Consequently, Heidi and her family now advocate for the passage of Simon\u2019s Law in every state, which specifies that medical staff <em>cannot<\/em> put DNR orders or other medical orders withholding life-sustaining treatments \u2014\u00a0which could include surgeries, IV hydration or other nutrition, medications, and oxygen or airway management \u2014\u00a0in children\u2019s medical charts without parental knowledge or consent.<\/p>\n<p>Fortunately, Sajjona survived that initial hospital stay.<\/p>\n<p>\u201cThere\u2019s not a typical day for Sajjona, because we\u2019re very energetic, outgoing people, and Sajjona enjoys her life,&#8221; Heidi said. &#8220;She loves swimming, she goes to the park. She has homeschool friends. She goes to amusement parks. She loves to jump in a jump trainer, she does walk in a gait trainer. She can open her hands. And she says words, she says \u2018mama,\u2019 she says \u2018dada.\u2019\u201d<\/p>\n<p>Sajjona has motivated Heidi to assist other parents in advocating for their own children with profound medical needs.<\/p>\n<p>\u201cGod has a purpose for Sajjona\u2019s life, and one of those purposes is that she\u2019s helping other children,&#8221; Heidi said, explaining how one little girl she knew of was refused heart surgery in California due to her complex medical case. But Heidi urged the family to seek a second opinion, and \u201cshe got a transfer, she went to Nebraska. She got the heart surgery done. She is now four years old, going to be five in February. And if she\u2019d stayed in California, she would not be here. And that\u2019s just one of the people Sajjona saved.\u201d<\/p>\n<p><a href=\"https:\/\/pledge.liveaction.org\/?utm_source=lan&amp;utm_medium=email&amp;utm_campaign=prolife_pledge\"><img decoding=\"async\" loading=\"lazy\" class=\"aligncenter size-large wp-image-277267\" src=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2022\/10\/pledge-live-action-ad-970x250-700x180.jpg\" alt=\"\" width=\"700\" height=\"180\" \/><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Shout My Story recently released another video, this time profiling Sajjona, a five-year-old girl living with Trisomy 18, and how she was almost left to die solely due to her disability. Sajjona\u2019s mother, Heidi, conceived at age 48 \u2014\u00a0and while the news was unexpected, the whole family was \u201cvery, very excited, very happy.\u201d And then [&hellip;]<\/p>\n","protected":false},"author":635,"featured_media":282838,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[9455,3473],"tags":[19,455,19735,14932,14933,665,17636,7670,3944],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Baby girl with Trisomy 18 was almost left to die, but today she &#039;enjoys her life&#039;<\/title>\n<meta name=\"description\" content=\"Born with Trisomy 18, medical staff was ready to let a baby girl die simply because of her disability -- until her parents stepped in to fight for her.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, 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