{"id":222941,"date":"2020-05-06T08:30:44","date_gmt":"2020-05-06T13:30:44","guid":{"rendered":"https:\/\/www.liveaction.org\/news\/?p=222941"},"modified":"2020-05-05T18:32:59","modified_gmt":"2020-05-05T23:32:59","slug":"brittle-bone-disease-married-life-good","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/brittle-bone-disease-married-life-good\/","title":{"rendered":"Living with brittle bone disease, Kristin Victoria is happily married and says ‘life is good’"},"content":{"rendered":"
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In a recent episode of Born Different<\/a>, Kristin Victoria and her husband Mark shared what living with osteogenesis imperfecta – commonly known as brittle bone disease<\/a>\u00a0– is like for them as a couple. And from their perspective, life looks pretty good.<\/p>\n

“I have heard people say, ‘If I was in your position, I would kill myself,'” said Victoria. It’s an attitude<\/a> that clearly frustrates her because she loves her life and is proud of her accomplishments. Yet society still fails to view her life as normal or even worthy.<\/p>\n

As a baby, Victoria would break a bone on a weekly basis, and heal just as quickly, her mother explained.\u00a0“It was a good thing that you had a doctor like Dr. Mosley,” she told Victoria in the video, “because when I was bringing you home from the hospital I was asking him, ‘What am I gonna have to do? What should I do?’ And he says, ‘Just treat her normal. Just let her be.’ And I thought, ‘How can I treat her normal when she’s got such fragile brittle bones?’ And he says ‘No matter what happens she’s going to break. The more you stop her from doing things the more difficult life is going to be for her. Just let her be. Let her do things and take the breaks as they come.'”<\/p>\n