{"id":172374,"date":"2017-09-26T10:23:36","date_gmt":"2017-09-26T14:23:36","guid":{"rendered":"https:\/\/www.liveaction.org\/news\/?p=172374"},"modified":"2017-09-26T01:18:32","modified_gmt":"2017-09-26T05:18:32","slug":"doctor-questions-fatal-fetal-abnormalities-fatal-parents-led-believe","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/doctor-questions-fatal-fetal-abnormalities-fatal-parents-led-believe\/","title":{"rendered":"Doctor questions whether &#8216;fatal fetal abnormalities&#8217; are as fatal as parents are led to believe"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p style=\"text-align: center;\"><em>\u201cWhen a child is discovered to have a life-limiting condition after birth, we do not suggest to families<br \/>\n<\/em><em>that their grief and devastation will be helped if we hasten death. <\/em><\/p>\n<p style=\"text-align: center;\"><em>Why do we do so before birth?\u201d<\/em><\/p>\n<p>This question, asked last week by Breda O\u2019Brien in the <a href=\"https:\/\/www.irishtimes.com\/opinion\/breda-o-brien-when-fatal-foetal-abnormalities-are-not-so-fatal-1.3230591?mode=amp\">Irish Times<\/a>, is one pro-life advocates have been asking for a very, very long time. And it is one which more disability rights advocates are also beginning to ask, as they see what appears to be the increasing discrimination against preborn children with prenatal diagnoses.<\/p>\n<p>O\u2019Brien tells the story of Dr. Marty McCaffrey, a \u201cclinical professor in neonatal-perinatal medicine at UNC Chapel Hill\u201d who, upon attending a disability conference in 2009, discovered that \u201cfatal fetal abormalities\u201d might not be so fatal after all. McCaffrey noted that many of the children attending the conference with their families had conditions that most in the medical community label as \u2018incompatible with life,\u2019 and yet, these children were very much alive. When McCaffrey looked for an explanation on the matter, O\u2019Brien says he found something \u201cdisturbing, a medical version of the self-fulfilling prophecy. He dubbed it \u2018lethality begets lethality\u2019. In short, if children with trisomies were expected to die, they did \u2013 in far greater numbers.\u201d<\/p>\n<p style=\"text-align: center;\"><iframe loading=\"lazy\" src=\"https:\/\/www.youtube.com\/embed\/bHe8YGPGzj4\" width=\"640\" height=\"355\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>O\u2019Brien goes on to say that \u201cUS research published in 2016\u201d found (emphasis added):<\/p>\n<blockquote><p>Some 36 per cent of children with a prenatal diagnosis lived less than 24 hours and 47 per cent were discharged home, <em>compared with 1 per cent who lived less than 24 hours and 87 per cent who were discharged home when the condition was discovered after birth.<\/em><\/p>\n<p>When discovered prenatally, generally speaking very limited interventions were offered, often excluding hydration. <em>When discovered after birth, interventions included oxygen, ventilation, tube feeding and intravenous fluids.<\/em><\/p><\/blockquote>\n<p>The implications of such jaw-dropping statistics should shock us. O\u2019Brien points out that decades ago, the life expectancy for children born with Down syndrome was about nine years. Today, it is 60 \u2014 and this, she says, is because families began to advocate for their children with disabilities in the 1960\u2019s, and as a result, the \u201chumanity and equality of people with intellectual disability began to be recognised more.\u201d Today, for preborn babies diagnosed with Down syndrome as well as those diagnosed with more severe disabilities, families find a \u201cdisgraceful lack of support\u201d because of the highly subjective \u201cquality of life\u201d argument, which implies that such children are not worth fighting for. To refuse to provide the same level of care for a child diagnosed prenatally as one would provide for a child diagnosed post-birth is not medicine. It is a kind of willful negligence &#8212; an appalling discrimination which leads to death.<\/p>\n<p>Along these lines, as Live Action News\u2019 Cassy Fiano <a href=\"https:\/\/archive.liveaction.org\/news\/outrageous-women-told-moral-duty-abort-children-down-syndrome\/\">reported<\/a> recently, more women receiving prenatal diagnoses of Down syndrome for their children are being pressured to abort. While this has been going on for a number of years, it seems that now, the medical community\u2019s dire predictions of poor quality of life and potential serious health problems just aren\u2019t enough; today, women in the Netherlands are being told that they have a \u201cmoral duty\u201d to abort children with disabilities. Iceland was recently reported to have \u201celiminated\u201d Down syndrome in the country, but it was quickly discovered that the country hadn\u2019t eliminated Down syndrome at all; it had <a href=\"https:\/\/archive.liveaction.org\/news\/iceland-isnt-eradicating-down-syndrome-it-is-killing-every-person-who-has-it\/\">eliminated the preborn babies who were diagnosed with it<\/a> \u2014 a deliberate search and destroy mission on human beings with a specific genetic condition.<\/p>\n<p style=\"text-align: center;\"><iframe loading=\"lazy\" src=\"https:\/\/www.youtube.com\/embed\/jgw4X7Dw_3k\" width=\"640\" height=\"355\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>In the face of severe pressure to abort when faced with conditions which are thought to be fatal, some families <a href=\"https:\/\/archive.liveaction.org\/news\/families-chose-life-faced-fetal-abnormalities\/\">still bravely choose life<\/a> for their babies, for as long as they have them &#8212; regardless of how long their children survive outside the womb. Others, claiming a <a href=\"https:\/\/archive.liveaction.org\/news\/fetal-abnormality-diagnoses-justify-later-term-abortions\/\">desire to end their children\u2019s perceived suffering<\/a>, choose to abort. And again, Breda O\u2019Brien\u2019s question comes back to us: Why would we suggest such a thing before birth if we would never suggest such a thing after? Perhaps our society has a misguided belief that eliminating pain and suffering is the most important thing \u2014 but abortion doesn\u2019t eliminate pain or grief. It simply eliminates human beings.<\/p>\n<p>And the ease of abortion access often causes even the medical community to view preborn children with disabilities as &#8220;less than&#8221; &#8212; as those whom they&#8217;ve already given up on, before they even emerge from the womb. If &#8220;lethality begets lethality,&#8221; as McCaffrey says, perhaps it&#8217;s time we start looking through the lens of hope instead.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u201cWhen a child is discovered to have a life-limiting condition after birth, we do not suggest to families that their grief and devastation will be helped if we hasten death. Why do we do so before birth?\u201d This question, asked last week by Breda O\u2019Brien in the Irish Times, is one pro-life advocates have been [&hellip;]<\/p>\n","protected":false},"author":292,"featured_media":57304,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[7],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Doctor questions whether &#039;fatal fetal abnormalities&#039; are as fatal as parents are led to believe<\/title>\n<meta name=\"description\" content=\"To refuse to provide the same level of care for a child diagnosed prenatally as for one diagnosed post-birth is appalling discrimination leading to death.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/archive.liveaction.org\/news\/doctor-questions-fatal-fetal-abnormalities-fatal-parents-led-believe\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Doctor questions whether &#039;fatal fetal abnormalities&#039; are as fatal as parents are led to believe\" \/>\n<meta property=\"og:description\" content=\"To refuse to provide the same level of care for a child diagnosed prenatally as for one diagnosed post-birth is appalling discrimination leading to death.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/archive.liveaction.org\/news\/doctor-questions-fatal-fetal-abnormalities-fatal-parents-led-believe\/\" \/>\n<meta property=\"og:site_name\" content=\"Live Action News\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/liveaction\" \/>\n<meta property=\"article:published_time\" content=\"2017-09-26T14:23:36+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2017-09-26T05:18:32+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/archive.liveaction.org\/news\/wp-content\/uploads\/2014\/12\/baby-feet-light-blue-e1419014939962.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"600\" \/>\n\t<meta property=\"og:image:height\" content=\"399\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Kelli Keane\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@liveaction\" \/>\n<meta name=\"twitter:site\" content=\"@liveaction\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Kelli Keane\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/archive.liveaction.org\/news\/doctor-questions-fatal-fetal-abnormalities-fatal-parents-led-believe\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/archive.liveaction.org\/news\/doctor-questions-fatal-fetal-abnormalities-fatal-parents-led-believe\/\"},\"author\":{\"name\":\"Kelli Keane\",\"@id\":\"https:\/\/archive.liveaction.org\/news\/#\/schema\/person\/c8d178142d9fce05b6e02107b7f27aa7\"},\"headline\":\"Doctor questions whether &#8216;fatal fetal abnormalities&#8217; 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