{"id":156612,"date":"2016-11-16T16:07:36","date_gmt":"2016-11-16T21:07:36","guid":{"rendered":"\/news\/?p=156612"},"modified":"2016-11-19T10:40:12","modified_gmt":"2016-11-19T15:40:12","slug":"miracle-baby-jaxon-continues-living-testimony-value-life","status":"publish","type":"post","link":"https:\/\/archive.liveaction.org\/news\/miracle-baby-jaxon-continues-living-testimony-value-life\/","title":{"rendered":"Miracle Baby Jaxon continues to be a living testimony of the value of life"},"content":{"rendered":"<div style=\"margin-top: 0px; margin-bottom: 0px;\" class=\"sharethis-inline-share-buttons\" ><\/div><p>Jaxon \u201cStrong\u201d Buell was born August 27, 2014, in Orlando, Florida to parents Brandon and Brittany Buell. He battles against microhydranencephaly, an extreme brain malformation that left him with 80 percent of his brain missing. Microhydranencephaly is a more complicated version of microcephaly, the birth defect thought to be linked to the Zika virus.<\/p>\n<p>Because of this incurable condition, his parents were told that he would not make it to the two year old mark, and doctors urged them to abort him. Yet baby Jaxon has passed the two year mark.<\/p>\n<p>Jaxon\u2019s daddy, Brandon, recently shared an update with TODAY documenting some of the recent success and setbacks with Jaxon\u2019s progress. <a href=\"http:\/\/www.today.com\/health\/jaxon-buell-boy-born-part-brain-missing-turns-2-t104875\">Brandon writes<\/a>:<\/p>\n<blockquote><p>We celebrate Jaxon\u2019s life every single day. We try to make it special for him. Whether reading a book in his room or cuddling on the couch together, it\u2019s the littlest thing, but for him, it\u2019s the world.<\/p>\n<p>Jaxon\u2019s situation is so uniquely different that there is no prognosis. No one knows what tomorrow will bring for him. We were told that he would not make it to 2-years-old and he passed it.<\/p><\/blockquote>\n<p style=\"text-align: center;\"><iframe loading=\"lazy\" style=\"border: none; overflow: hidden;\" src=\"https:\/\/www.facebook.com\/plugins\/video.php?href=https%3A%2F%2Fwww.facebook.com%2Ftoday%2Fvideos%2F10154724825936350%2F&amp;show_text=0&amp;width=560\" width=\"560\" height=\"315\" frameborder=\"0\" scrolling=\"no\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>Doctors believe that Jaxon\u2019s brain just stopped forming a few weeks into Brittany\u2019s pregnancy. The parents were originally informed that Jaxon would probably never hear, see, or talk, because the components of the brain that make those things possible are not there. Yet Jaxon is doing all those things. Brandon described some of the details:<\/p>\n<blockquote><p>He can see and hear. We\u2019ve noticed that he can smell. He can taste \u2014 because although he\u2019s still dependent on a feeding tube, we let him try different foods. We\u2019ll put jelly or ice cream on our fingers and place it in his mouth. There are certain foods where he scrunches his face and spits it out, and other times when he starts smiling. His senses are working and it\u2019s really amazing to watch that.<\/p>\n<p>He loves ice cream \u2014 he probably gets that from me. He likes mashed-up baby food like avocado, carrots, squash. He seemed to really hate banana, though.<\/p><\/blockquote>\n<p>Jaxon has seizures every day but otherwise, he is very happy and comfortable. His parents do their best to make each day special for Jaxon, especially now, since every passing day is one more day than doctors said he would live. Jaxon smiles all the time and is able to do more now than he used to be able to do. He has a bit more mobility and has more facial expressions.<\/p>\n<div class=\"ArticleAd1\">\n<p><!-- \/1011927\/LAN_300_by_250_top_article --><\/p>\n<div id=\"div-gpt-ad-1473179053567-0\" class=\"ArticleAd1a\"><script>\ngoogletag.cmd.push(function() { googletag.display('div-gpt-ad-1473179053567-0'); });\n<\/script><\/div>\n<\/div>\n<p>Brandon and Brittany agree that baby Jaxon has made their family stronger and have written about their experiences in a book entitled\u00a0<a href=\"https:\/\/www.amazon.com\/Dont-Blink-Little-Expected-Teaching\/dp\/149641652X\"><em>Don\u2019t Blink<\/em><\/a>. The title of the book alludes to the\u00a0Kenny Chesney <a href=\"https:\/\/www.youtube.com\/watch?v=4f0p5KqdU9U\">song<\/a> of the same name.\u00a0Jaxon\u2019s parents focus on this every day and try not to miss a single moment with him\u00a0because every day is a precious gift.<\/p>\n<p>Brandon summed up the latest update with: &#8220;His life is precious. We don\u2019t know what tomorrow will bring, but he\u2019s still here and we celebrate that. Whatever Jaxon needs that day, we will do.&#8221;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Jaxon \u201cStrong\u201d Buell was born August 27, 2014, in Orlando, Florida to parents Brandon and Brittany Buell. He battles against microhydranencephaly, an extreme brain malformation that left him with 80 percent of his brain missing. Microhydranencephaly is a more complicated version of microcephaly, the birth defect thought to be linked to the Zika virus. Because [&hellip;]<\/p>\n","protected":false},"author":467,"featured_media":156654,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[7],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Miracle Baby Jaxon continues to be a living testimony of the value of life - Live Action News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/archive.liveaction.org\/news\/miracle-baby-jaxon-continues-living-testimony-value-life\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Miracle Baby Jaxon continues to be a living testimony of the value of life - Live Action News\" \/>\n<meta property=\"og:description\" content=\"Jaxon \u201cStrong\u201d Buell was born August 27, 2014, in Orlando, Florida to parents Brandon and Brittany Buell. 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